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Resources For State Genetics Planning   .

Selected documents are available in PDF format to assist states in developing and expanding their genetics programs. Opening requires Adobe Acrobat. PDF icon symbol

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Genetics Through a Primary Care Lens

Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children 1st Meeting June 2004

National Conference of State Legislatures (NCSL)
Genetics Legislation Database

Regional Genetics and Newborn Screening Collaboratives 

Genetics and the Law

Genomics: A Guide for Public Health

Secretary's Advisory Committee on Genetics, Health and Society (SACGHS)  

ASTHO Public Health Genetics Policy Statement PDF icon symbol

Genetics & Public Health and Related Resources on the World Wide Web PDF icon symbol

Medicaid HIPAA Plus - August 2001- Issue 9 PDF icon symbol

Websites with information on immunization registries PDF icon symbol

Websites with information on the Health Insurance Portability and Accountability Act of 1996 (HIPAA) PDF icon symbol

Selected excerpts -Title XXVI, Title XXVII, Title XXVIII PDF icon symbol

State Development Grants for Newborn Screening Efforts and Infrastructure Development - Worksheet for Technical Assistance PDF icon symbol

Integrating Genetic Services into Public Health - Guidance for State and Territorial Programs from the National Newborn Screening and Genetics Resource Center (NNSGRC) Community Genetics 4:3:2001, 175-196.  Available with permission from S. Karger AG, Basel (Switzerland). PDF icon symbol

2003 GSB/MCHB Integration of Newborn Screening & Genetic Service Systems with Other Maternal and Child Health Systems Conference PDF icon symbol

GSB/MCHB Technical Assistance Meeting for Newborn Screening & Genetics Infrastructure Grants - October  2002 

Summary Report: State Development Grantee Meeting FY 2002
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Integration of Science & Technology into Public Health/Health Resources and Services Administration/Maternal and Child Health Bureau (MCHB) Invitational Meeting - September 2000

Incorporating Genetic Medicine & Technology into Practice and Service: Heath Resources and Services Administration/Maternal and Child Health Bureau (MCHB) Invitational Meeting-November 1999

A Compendium of Resources on Genetic Testing of Children and Adolescents

Healthy People 2010
A statement of national health objectives. 

Genetics and Public Health in the 21st Century: Using Genetic Information to Improve Health and Prevent Disease 
Edited by MJ Khoury, W Burke, and E Thomson, Oxford University Press (2000) 

Guidelines for Clinical Genetic Services for the Public's Health  PDF icon symbol

Harnessing Genetics to Prevent Disease and Improve Health Guide for state policymakers on genetics, published by the Partnership for Prevention.  Also see the Executive Summary PDF icon symbol

State Assessment Tool - Comparing State Genetics Services to the CORN Guidelines for Clinical Genetic Services for the Public's Health

State Coverage Initiative 
The State Coverage Initiatives (SCI) program is a national initiative of The Robert Wood Johnson Foundation that helps states improve the availability and affordability of health insurance through grants, technical assistance, workshops, and written products.

Survey of Nationwide Public Health Genetics Activities - This report by the Coalition of State Genetics Coordinators is partially funded by the HRSA, MCH Bureau, through the National Newborn Screening and Genetic Resource Center (NNSGRC). 

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*All material within this website is presented as a public service, and does not necessarily represent endorsement by the NNSGRC and its sponsoring agencies. Users of this website are responsible for checking the accuracy, completeness, currency, and/or suitability of all information contained herein.