National Newborn Screening and Genetics Resource Center
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GENETICS

Genetics Programs

US Newborn Screening Programs                                                    Clickable map of the US linking to information on each state's newborn screening program and website.

ACMG Clinical Genetics Services Searchable Database                         The database provides the public and healthcare providers a way to find genetic services by the name of a specific genetics clinic, type of genetics provider, areas of specialty, services provided, or provider location, with the results displayed with Google Earth software.

Collaboratives                                                                               Regional genetics and newborn screening collaboratives. Map of the US with links to contact information and websites for each regional collaborative.

CDC- Pediatric Genetics                                                                        Information on genetic disorders, family health history, genetic counseling, and newborn screening.

NCCRCG                                                                                         National Coordinating Center for the Genetics and Newborn Screening Regional Collaboratives.

Genetics Projects

Ask the Geneticist                                                                                  Ask the geneticist is a collaborative effort between Emory University and the University of Alabama at Birmingham to answer questions about genetic concepts and the etiology, research, treatment, testing and predisposition to genetic disorders.

Genetic Dilemmas in Primary Care                                                   Educational program about the medical and ethical challenges raised by genetic testing in primary care practice

Genetic Education Materials Database (GEMdatabase)                       Searchable database of genetics education materials

Genetics in Primary Care (GPC) Training Program 
                            
Training modules that provide a series of teaching cases, developed to be representative of patients seen in primary care, while also allowing for the demonstration of genetics issues and principles.

Genetics Literacy Project                                                              Literature and Materials Review (2001) This working report considers how various actors, such as researchers, practitioners, journalists, etc produce and disseminate information about genetics and health.

GENE Project Literature Review                                                            Literature review for Genetics Education Needs Evaluation (GENE) Project (2005); Five year initiative aimed at improving access to genetics information.                                           

 Additional Links

Academic Links                                                                                         Links to academic sites containing genetics resources and materials.

State Program Links                                                                              Links to state programs and related websites.

Genetics Resources for State Planning                                             Assorted documents and websites useful in assisting states in developing and expanding their genetics programs. 

Genetics State Plans                                                                            PDF files of available state genetics plans.

Genetic Testing                                                                                       Information on genetic testing provided by the CDC

Parent and Family Links                                                                    Links to genetics and health based websites aimed at the public (consumers, patients, and families).    

Reports and Publications                                                                 Assorted reports and publications on genetics, health, and special needs.

Ethical, Legal, and Social Issues (ELSI) Links                                        Links to websites focusing on ethical and legal issues in genetics.

                                    

  

     
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*All material within this website is presented as a public service, and does not necessarily represent endorsement by the NNSGRC and its sponsoring agencies. Users of this website are responsible for checking the accuracy, completeness, currency, and/or suitability of all information contained herein.
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