National Newborn Screening and Genetics Resource Center
HomeContact UsEventsParents/FamiliesProfessionalsNNSIS

  State Genetic Information         

State Genetics Contact:

Janet Farrel
Children and Youth with Special Needs Program
250 Washington Street, 5th Floor
Boston, MA 02108

Clinical Genetic Services:

Clinical genetics are medical services provided to individuals, families, and populations who have or are at risk for disorders with genetic implications. Services include testing, counseling, education, treatment, and where appropriate, referral for other services.

Click on the links below for:
-Care Coordination for Children with Special Health Care Needs

GeneTests, is a publicly-funded, medical genetics information resource that has a searchable clinical directory for all states, type of service, and specialty clinic.
Click here for: Gene Tests Homepage
Click here for: GeneTests - Massachusetts Clinical Directory
Genetic Counselor Training Programs:

Click for: - Brandeis University

              - Boston University School of Medicine


Genetic legislation may be clearly expressed in public health statutes. It may also be embedded in other regulations, administrative rules, or other less obvious statutes, e.g. labor law. Identifying and interpreting state genetics legislation is not necessarily straightforward. Examples of genetic-related legislation in Massachusetts are:

Click on blue link for:

Chapter 175. Section 120 E. Life insurance policies – genetic tests; discrimination based on genetic information

Chapter 176I. Section 4A. Preferred Provider Arrangements.
Health benefit plans; genetic tests; discrimination based on genetic information

Resources for genetic legislation include:

State genetics contact

Click here for: Massachusetts State Legislature Online

Click here for: National Conference of State Legislatures (NCSL) Genetics Laws and Legislative Activity.  Select a topic of interest for legislation in each state (where available).



*All material within this website is presented as a public service, and does not necessarily represent endorsement by the NNSGRC and its sponsoring agencies. Users of this website are responsible for checking the accuracy, completeness, currency, and/or suitability of all information contained herein.