National Newborn Screening and Genetics Resource Center
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Iowa
    
  State Genetic Information         

Click for: Iowa Department of Public Health/Center for Congenital and Inherited                                Disorders

              Genetics and Newborn Screening Region 5 Collaborative 

State Genetics Coordinator:

Kimberly Noble Piper  

Iowa Department of Public Health
Center for Congenital and Inherited Disorders
321 E. 12th Street
Lucas State Office Building
Des Moines, IA 50319-0075
(515)281-6466
Kpiper@idph.state.ia.us

 
 
Needs Assessment/Planning:

Click here for: Iowa State Genetics Plan   
 
 
Clinical Genetic Services:

Click here for:
Iowa Regional Genetic Consultation Service (RGCS)

Provides comprehensive, family centered, genetic health care to individuals and families throughout Iowa with statewide outreach clinics. The primary purpose of the RGCS is to provide this structure as an integral component of the state's health-care system. The secondary purpose is to assure the provision of statewide genetics education to promote health and prevent disease. Services include diagnostic evaluations, confirmatory testing, medical management, provision of non-directive genetic counseling to individuals and families, case management, individual and family support, education, consultation, and referral.

GeneTests, is a publicly-funded, medical genetics information resource that has a searchable clinical directory for all states, type of service, and specialty clinic.
Click here for: Gene Tests Homepage
Click here for:
GeneTests - Iowa Clinical Directory
 
 
 Legislation:

Genetic legislation may be clearly expressed in public health statutes. It may also be embedded in other regulations, administrative rules, or other less obvious statutes, e.g. labor law. Identifying and interpreting state genetics legislation is not necessarily straightforward. Examples of genetic-related legislation in Iowa are:

Click here for: Iowa Code and Administrative Rules as they relate to the Center for  Congenital and Inherited Disorders programs.

Resources for genetic legislation include:

State Genetics Coordinator

Click here for: Iowa Legislature General Assembly Online

Click here for: National Conference of State Legislatures (NCSL) Genetics Laws and Legislative Activity.  Select a topic of interest for legislation in each state (where available).
 

 

 

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