National Newborn Screening and Genetics Resource Center
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Glossaries and Other References
Newborn Screening
Birth Defects

Policies And Laws - Public Health Genetics

Association of State and Territorial Health Officials (ASTHO) - Policy Statements

Children's Health Act of 2000

HHS  HIPAA National Privacy Standards

National Conference of State Legislatures (NCSL)

            Links to State Newborn Screening Laws

            Policy Briefs: Current Genetics Issues of The Day

American Academy of Pediatrics 

     Distinguishing Sudden Infant Death Syndrome From Child Abuse Fatalities (RE0036)     

     Technical Report: Congenital Adrenal Hyperplasia (RE0027)

     Newborn and Infant Hearing Loss: Detection and Intervention (RE9846)

     Newborn Screening Fact Sheets (RE9632) 

American College of Medical Genetics

     Universal Newborn Hearing Screening 

     Policy Statement on Tandem Mass Spectrometry in Newborn  Screening.
PDF file

International References

Australasia Policy Statement on the Retention, Storage and Use of Sample Cards from Newborn Screening Programs

Australasia Newborn Screening Policy

UK National Screening Committee



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