National Newborn Screening and Genetics Resource Center
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Birth Defects Organizations

Anencephaly Support Foundation

The Arc of the U.S.

Genetic Alliance

Asociación de Espina Bífida de Nuevo León


Blue Rubber Bleb Nevus Syndrome

Birth Defect Research for Children

The Carter Centers (Holoprosencephaly)

Chromosome 18 Registry & Research Society

Chromosome 22 Central

SMILES (Clefts)

Craniofacial Anomalies in S. Texas--Baylor College of Dentistry

Fetal Alcohol and Drug Unit, University of Washington

Fetal Treatment Center at UCSF

Fetal Diagnosis Center, Children's Hospital of Philadelphia 

Genetic Alliance Disease infoSearch

Genetic Syndromes Support

Hereditary Disease Foundation

Histiocytosis Association Online Library

International Center for Birth Defects Registries (Italian)

International Federation for Hydrocephalus and Spina Bifida

Kennedy Krieger Institute

Magic Foundation: Human Growth

March of Dimes Home Page

National Association For Down Syndrome

National Birth Defects Center

National Birth Defects Prevention Network

National Organization on Fetal Alcohol Syndrome

Organization of Teratology Information Services

Osteogenesis Imperfecta Foundation, Inc.

Save Babies through Screening

Spina Bifida Association

Teratology Society

Texas Fetal Alcohol Syndrome Consortium

Texas Center for Disability Studies

Trisomy 18 Foundation

Turner's Syndrome Society

Twin-Twin Transfusion Syndrome Foundation

World Craniofacial Organization