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Selected documents are available in PDF format to assist
states in developing and expanding their genetics programs. Opening
requires Adobe Acrobat. 
Unable to open files?
Genetics Through a Primary Care Lens
Advisory
Committee on Heritable Disorders and Genetic Diseases in Newborns
and Children 1st Meeting June 2004
National Conference of State Legislatures (NCSL)
Genetics Legislation Database
Regional Genetics
and Newborn Screening Collaboratives
Genetics and the Law
Genomics:
A Guide for Public Health
Secretary's
Advisory Committee on Genetics, Health and Society (SACGHS)
ASTHO Public Health Genetics Policy Statement
Genetics & Public Health and Related Resources on the World Wide Web
Medicaid HIPAA Plus - August 2001- Issue 9
Websites with information on immunization registries
Websites with information on the Health Insurance Portability and Accountability Act of 1996
(HIPAA)
Selected excerpts -Title
XXVI, Title XXVII, Title XXVIII
State Development Grants for Newborn Screening Efforts and Infrastructure Development - Worksheet for Technical Assistance
Integrating Genetic Services into Public Health - Guidance for State
and Territorial Programs from the National Newborn Screening and Genetics
Resource Center (NNSGRC) Community Genetics 4:3:2001, 175-196.
Available with permission from S. Karger AG, Basel (Switzerland).
2003 GSB/MCHB Integration of Newborn
Screening & Genetic Service Systems with Other Maternal and Child
Health Systems Conference
GSB/MCHB Technical Assistance Meeting for Newborn Screening & Genetics
Infrastructure Grants - October 2002
Summary Report: State Development Grantee Meeting FY 2002
Integration
of Science & Technology into Public Health/Health Resources and
Services Administration/Maternal and Child Health Bureau (MCHB)
Invitational Meeting - September 2000
Incorporating Genetic Medicine & Technology into Practice and Service: Heath
Resources and Services Administration/Maternal and Child Health Bureau (MCHB) Invitational Meeting-November 1999
A Compendium of
Resources on Genetic Testing of Children and Adolescents
Healthy
People 2010
A statement of national health objectives.
Genetics
and Public Health in the 21st Century: Using Genetic Information to
Improve Health and Prevent Disease
Edited by MJ Khoury, W Burke, and E Thomson, Oxford University Press
(2000)
Guidelines for Clinical Genetic Services for the Public's Health
Harnessing Genetics to Prevent Disease and Improve Health
Guide for state policymakers on genetics, published by the Partnership
for Prevention. Also see the Executive
Summary
State Assessment Tool
- Comparing State Genetics Services to the CORN Guidelines for Clinical
Genetic Services for the Public's Health
State Coverage
Initiative
The State Coverage Initiatives (SCI) program is a national
initiative of The Robert Wood Johnson
Foundation that helps states improve the availability and
affordability of health insurance through grants, technical
assistance, workshops, and written products.
Survey
of Nationwide Public Health Genetics Activities - This report
by the Coalition of State Genetics Coordinators is partially funded by the
HRSA, MCH Bureau, through the National Newborn Screening and Genetic Resource Center
(NNSGRC).
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