GENETICS

Genetics Programs

US Newborn Screening Programs                                                    Clickable map of the US linking to information on each state's newborn screening program and website.

Collaboratives                                                                               Regional genetics and newborn screening collaboratives. Map of the US with links to contact information and websites for each regional collaborative.

NCCRCG                                                                                         National Coordinating Center for the Genetics and Newborn Screening Regional Collaboratives.

Genetics Projects

Ask the Geneticist                                                                                  Ask the geneticist is a collaborative effort between Emory University and the University of Alabama at Birmingham to answer questions about genetic concepts and the etiology, research, treatment, testing and predisposition to genetic disorders.

Genetic Dilemmas in Primary Care                                                   Educational program about the medical and ethical challenges raised by genetic testing in primary care practice

Genetic Education Materials Database (GEMdatabase)

Genetics in Primary Care (GPC) Training Program                              Training modules that provide a series of teaching cases, developed to be representative of patients seen in primary care, while also allowing for the demonstration of genetics issues and principles.

Genetics Literacy Project                                                              Literature and Materials Review (2001) This working report considers how various actors, such as researchers, practitioners, journalists, etc produce and disseminate information about genetics and health.

GENE Project Literature Review                                                            Literature review for Genetics Education Needs Evaluation (GENE) Project (2005); Five year initiative aimed at improving access to genetics information.                                           

 Additional Links

Academic Links                                                                                         Links to academic sites containing genetics resources and materials.

State Program Links                                                                              Links to state programs and related websites.

Genetics Resources for State Planning                                             Assorted documents and websites useful in assisting states in developing and expanding their genetics programs. 

Genetics State Plans                                                                            PDF files of available state genetics plans.

Parent and Family Links                                                                    Links to genetics and health based websites aimed at the public (consumers, patients, and families).    

Reports and Publications                                                                 Assorted reports and publications on genetics, health, and special needs.

Ethical, Legal, and Social Issues (ELSI) Links                                        Links to websites focusing on ethical and legal issues in genetics.