Genetics Ethical, Legal, and Social Issues

Links to sites, reports and publications dealing with ethical issues in genetics

Communities of Color & Genetics Policy Project 

A project started in 1999 to engage African American and Latino communities in dialogue about values, genetics, and public policy.

Council for Responsible Genetics (CRG)

A non-profit organization which disseminates accurate information via the media and concerned citizens, as well as represents the public interest on emerging issues in biotechnology.

Ethical, Legal, and Social Issues (ELSI) Program 

A study about the availability of genetic information, with regard to fairness of use of this information and privacy and confidentiality.

Secretary’s Advisory Committee on Genetic Testing (SACGT)

Advised the government about all aspects of the development and use of genetic tests, including the complex medical, ethical, legal, and social issues raised by genetic testing.