National Newborn Screening and Genetics Resource Center
HomeContact UsEventsParents/FamiliesProfessionalsNNSIS


Oregon
       State Genetic Information         

State Genetics Contact:

Kerry Silvey, MA, CGC
Public Health Genetics Specialist
Child Development & Rehabilitation Center (CDRC),
Oregon Health & Science University (OHSU)
phone: 541/346-2610
fax: 541/346-5844
ksilvey@uoregon.edu

Mailing Address:
CDRC-Clinical Services Building
901 East 18th Avenue
Eugene, OR 97403-5254

 
 
Needs Assessment/Planning:

Click here for: Oregon Genetics Program State Needs Assessment and Plan

Site contains:
  • Strategic Plan for Genetics and Public Health (2002)
  • Genetics and Public Health in Oregon: A Summary of Assessment Methods and Findings
  • Complete State Needs Assessment
  • Assessment Tools and Reports
  • Oregon Genetics Plan Advisory Council Members
     
 
Clinical Genetic Services:

Clinical genetics are medical services provided to individuals, families, and populations who have or are at risk for disorders with genetic implications. Services include testing, counseling, education, treatment, and where appropriate, referral for other services.

Click here for: Oregon Genetic Services

GeneTests, is a publicly-funded, medical genetics information resource that has a searchable clinical directory for all states, type of service, and specialty clinic.
Click here for: Gene Tests Homepage
Click here for: GeneTests - Oregon Clinical Directory
 
 
 Legislation:

Genetic legislation may be clearly expressed in public health statutes. It may also be embedded in other regulations, administrative rules, or other less obvious statutes, e.g. labor law. Identifying and interpreting state genetics legislation is not necessarily straightforward. Examples of genetic-related legislation in Oregon are:

Click for: - Chapter 659A. Unlawful Discrimination in Employment. Section 300-303. Related 
                to Genetic Testing.

              - Chapter 192. Policy Concerning Public Records. Section 531-549 Genetic privacy.  
              - Chapter 746. Trade Practices. Section 135 Genetic tests and information; rules. 

Genetic Privacy
A history of Oregon genetics privacy laws and links to genetic privacy statutes can be found at: Oregon Department of Human Services/Genetics Program Research and Privacy site.

Resources for genetic legislation include:

● State genetics contact

● Click here for: Oregon State Legislature Online
● Click here for: National Conference of State Legislatures (NCSL) Genetics Laws and Legislative Activity.  Select a topic of interest for legislation in each state (where available).
 

 
 


 
 
spacer
*All material within this website is presented as a public service, and does not necessarily represent endorsement by the NNSGRC and its sponsoring agencies. Users of this website are responsible for checking the accuracy, completeness, currency, and/or suitability of all information contained herein.
spacer