GENERAL INFORMATION

MASSACHUSETTS

State Genetic Information

State Genetics Contact:

Janet Farrell
Children and Youth with Special Needs Program
250 Washington Street, 5th Floor
Boston, MA 02108
Tel: 800-882-1435
Tel: 617-624-5959

Massachusetts Department of Public Health
Genetics and Newborn Screening Region 1 Collaborative

Clnical Genetic Services

Clinical genetics are medical services provided to individuals, families, and populations who have or are at risk for disorders with genetic implications. Services include testing, counseling, education, treatment, and where appropriate, referral for other services.

GeneTests, is a publicly-funded, medical genetics information resource that has a searchable clinical directory for all states, type of service, and specialty clinic.
Gene Tests Homepage
GeneTests-Massachusetts Clinical Directory

Genetic Counselor Training Programs

Brandeis University
Boston University School of Medicine

Legislation

Genetic legislation may be clearly expressed in public health statutes. It may also be embedded in other regulations, administrative rules, or other less obvious statutes, e.g. labor law. Identifying and interpreting state genetics legislation is not necessarily straightforward. Examples of genetic-related legislation in Massachusetts are:
Chapter 175. Section 120 E. Life insurance policies – genetic tests; discrimination based on genetic information
Chapter 176I. Section 4A. Preferred Provider Arrangements. Health benefit plans; genetic tests; discrimination based on genetic information

Resources for genetic legislation include: