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| State Genetics Contact: Janet Farrell Children and Youth with Special Needs Program 250 Washington Street, 5th Floor Boston, MA 02108 (800)882-1435 617-624-5959 |
| Clinical Genetic Services: Clinical genetics are medical services provided to individuals, families, and populations who have or are at risk for disorders with genetic implications. Services include testing, counseling, education, treatment, and where appropriate, referral for other services. Click on the links below for: -Care Coordination for Children with Special Health Care Needs GeneTests, is a publicly-funded, medical genetics information resource that has a searchable clinical directory for all states, type of service, and specialty clinic. Click here for: Gene Tests Homepage Click here for: GeneTests - Massachusetts Clinical Directory |
| Genetic Counselor Training
Programs: Click for: - Brandeis University - Boston University School of Medicine |
| Legislation: Genetic legislation may be clearly expressed in public health statutes. It may also be embedded in other regulations, administrative rules, or other less obvious statutes, e.g. labor law. Identifying and interpreting state genetics legislation is not necessarily straightforward. Examples of genetic-related legislation in Massachusetts are: Click on blue link for: Chapter 175. Section 120 E. Life insurance policies – genetic tests; discrimination based on genetic information Chapter 176I. Section 4A. Preferred Provider Arrangements. Health benefit plans; genetic tests; discrimination based on genetic information Resources for genetic legislation include: ● State genetics contact ● Click here for: Massachusetts State Legislature Online ● Click here for: National Conference of State Legislatures (NCSL) Genetics Laws and Legislative Activity. Select a topic of interest for legislation in each state (where available). |
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