National Newborn Screening and Genetics Resource Center
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Hawaii
       State Genetic Information         

State Genetics Coordinator:

Sylvia Au, MS, CGC
Hawaii Department of Health
741 Sunset Avenue
Honolulu, HI 96816
(808)733-9063
sylvia@hawaiigenetics.org
 
 
Needs Assessment/Planning:

State Genetics Projects

Click on the title for:

Hawaii Genetic Assessment and Planning Project

Hawaii Genetic Awareness, Implementation, and Data Project

Etiology of Hearing Loss Project

Newborn Screening using Tandem Mass Spectrometry: Financial, Ethical, Legal and Social Issues
 
 
Clinical Genetic Services:

Clinical genetics are medical services provided to individuals, families, and populations who have or are at risk for disorders with genetic implications. Services include testing, counseling, education, treatment, and where appropriate, referral for other services.

Click here for: Hawaii State Department of Health Guide to Genetic Services

GeneTests, is a publicly-funded, medical genetics information resource that has a searchable clinical directory for all states, type of service, and specialty clinic.
Click here for: Gene Tests Homepage
Click here for: GeneTests - Hawaii Clinical Directory
 
 
 Legislation:

Genetic legislation may be clearly expressed in public health statutes. It may also be embedded in other regulations, administrative rules, or other less obvious statutes, e.g. labor law. Identifying and interpreting state genetics legislation is not necessarily straightforward. One example of genetic-related legislation in Hawaii is:

Click here for: Title 24. Insurance Code. §431:10A-118 Genetic information nondiscrimination in accident and health or sickness insurance coverage. 

Resources for genetic legislation include:

● State genetics cooordinator

● Click here for: Hawaii Legislature Online

● Click here for: National Conference of State Legislatures (NCSL) Genetics Laws and Legislative Activity.  Select a topic of interest for legislation in each state (where available).
 

 
 
 
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