GEMDatabase
National Newborn Screening and Genetics Resource Center

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National Newborn Screening and Genetics Resource Center
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Title:
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Subject:
Basic Genetics Information
Birth Defects Monitoring
Consumer Advocacy & Peer Support
Data
    Consumer & Health Care Provider Genetics Education
    Ethical Issues
     
Eugenics
  Patenting
  Privacy & Informed Consent
  Research Policy
  Other Ethical Issues
    Evaluation of Services & Programs
    Exposures During Pregnancy (Teratogens)
    Financial & Economic Issues
    Genetic Screening & Testing
     
Carrier Testing
  DNA Banking
  Newborn Screening
  Prenatal Diagnosis
  Presymptomatic & Predisposition Testing
  Other Genetic Screening & Testing Issues
    Genetics Services
     
Cultural Competency
  Gene Therapy & Other Treatments
  Indications for Referral
  Services for Families with Genetic Conditions
  Other Genetics Services Issues
    Policy - Guidelines, Protocols, Position Statements, Consensus Statements
    State Genetics Documents
     
Advisory Committees
  State Genetics Plans
  Other State Genetics Documents
Audience:
Consumers/Patients/Public
 
Professionals
     
Health Care Providers
  Policy Makers/Public Health
  Teachers
  Other Professionals
Language:

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Format:
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Books, manuals, curricula, published articles, reports, policy statements/guidelines, forms
Videos, slides, posters
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