Birth Defects Organizations

Bone, Joint

Osteogenesis Imperfecta Foundation, Inc.


Histiocytosis Association Online Library
Twin-Twin Transfusion Syndrome Foundation

Chromosome Disorders

Chromosome 18 Registry & Research Society
Trisomy 18 Foundation
Chromosome 22 Central
National Association For Down Syndrome
Turner's Syndrome Society


Craniofacial Anomalies in S. Texas--Baylor College of Dentistry
SMILES (Clefts)
World Craniofacial Organization

Fetal Alcohol Syndrome

Fetal Alcohol and Drug Unit, University of Washington
National Organization on Fetal Alcohol Syndrome
Texas Fetal Alcohol Syndrome Consortium

Nervous System

Anencephaly Support Foundation
Asociación de Espina Bífida de Nuevo León
The Carter Centers (Holoprosencephaly)
International Federation for Hydrocephalus and Spina Bifida
Spina Bifida Association


Organization of Teratology Information Services
Teratology Society

Other Disorders
Critical Congenital Heart Defects Video- Baby's First Test
Kennedy Krieger Institute (Nervous and Musculoskeletal system disorders)
Magic Foundation: Human Growth


Genetic Alliance
Fetal Treatment Center at UCSF
Fetal Diagnosis Center, Children's Hospital of Philadelphia 
Genetic Alliance Disease infoSearch
Genetic Syndromes Support
Hereditary Disease Foundation
International Center for Birth Defects Registries (Italian)
March of Dimes Home Page
National Birth Defects Prevention Network
Save Babies through Screening
Birth Defect Research for Children
Texas Center for Disability Studies
The Arc of the U.S.