GSB/MCHB Technical
Assistance Meeting for Newborn Screening & Genetics
Infrastructure Grants
Proceedings
Proceedings of the Technical Assistance Meeting for Newborn Screening
& Genetics Infrastructure Grants - Rockville, Maryland -October 10-11, 2002
Pyramid Exercise - Powerpoint Slides (See
page 19 of the proceedings above for description)
Meeting Participants
Presentations - Speakers
Achieving Community-Based Service Systems for
Children with Special Health Care Needs and Their Families - Merle
McPherson
Integrated NBS Service Initiative:
A Conceptual
Overview - Deborah Linzer
Integrating Genetic Services into Public Health:
Guidance for State and Territorial
Programs - Celia Kaye
State of the States- Newborn Screening
- Brad Therrell
Association of State and Territorial Health
Officials' Genetics Program
Laura Sternesky
Center for Innovation in Health Information
Systems: SourceBook and Self-Assessment
Guide - David Ross
NNSGRC Experiences- Examples of Data Integration in Newborn Screening
- Brad Therrell
The Importance of Medical Home Involvement in Screening Systems
Thomas F. Tonniges
Integrating Information Systems- Vision and Process
- Alan Hinman
Technical Assistance for Newborn Screening & Genetics Infrastructure Grants- Next Steps
- Deborah Linzer
Integration of Newborn Screening and Genetic Service Systems with Other
Maternal Child Health Systems: A Sourcebook for Planning and Development
(Draft)
Executive Summary
Introduction
I.
Key Elements for Integration of Public Health Programs and Their
Information Systems
II.
Best Practices in Implementing Key Elements of Information Systems
Integration
III.
Case Studies: Utah and Missouri
IV.
Lessons Learned
Appendices:
Project Briefs, CHARM Stakeholders, Genetics and Health Information
Technology Resources
Bibliography
(Complete
Sourcebook)- 280 kb file
State Project Abstracts and Presentations
Note: All presentations on this page are also available
as links on the meeting agenda
page: Go
To Agenda
Many of the resources above are presented in PDF format. If you
are unable to open the files you can download a free copy of Acrobat
Reader at the following link:
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