For Professionals

ACT Sheets(ACMG)

Developed by medical experts, these information sheets describes the short term actions a health professional should follow after receiving a screening report indicating the possible presence of a screened condition. Flow sheets showing next steps in the diagnostic process are also available on the same ACMG website. Viewers must first agree to terms of use before access will be granted.

General Resources

Links to State programs, government resources, professional organizations, genetics policies and laws, references and tools, and HRSA resources.

Newborn Screening

History and overview of newborn screening, screening programs and services, and legislation and policies.

State Newborn Screening Program Contacts

PDF file containing contact information for the laboratory and follow-up coordinators in each state's and territory's newborn screening program.


Genetics programs, services, and projects. Academic links, genomic testing, parenting and family links, and ethical, legal and social issues links.

Birth Defects

Links to state programs, reports and publications, and organizations, such as advocacy and support groups.