Parent and Family Resources

Frequently Asked Questions About Newborn Bloodspot Screening

Why does my baby need Newborn Screening tests?

Most babies are healthy when they are born.  We test all babies because a few babies look healthy but have a rare health problem. If we find problems early, we can help prevent serious problems like mental retardation or death.

How will my baby be tested?

Before you leave the hospital, a nurse will take a few drops of blood from your baby’s heel. The hospital will send the blood sample to a newborn screening lab.

How will I get the results of the test?

Parents are notified of test results if additional testing is needed. Ask about results when you see your baby’s health professional.

How long will it take to get results?

Test times vary.  If additional testing is needed, you will be notified right away.  This may be within a couple of days of testing.  If the results are normal, it may take longer.  Ask your baby's health professional about the results.

Why do some babies need to be retested?

Your baby may be retested if you leave the hospital before 24 hours. Some States require a second test on all babies.  Some babies need to be retested because there is a problem with the blood sample.  A few babies need to be retested because the first test showed an increased risk for a health problem.

What if my baby needs to be retested?

Your baby’s health professional or the State Health Department will contact you if your baby needs to be retested. They will tell you why the baby needs to be retested and what to do next.  A retest does not mean that your baby is sick, but more testing needs to be done to be sure that your baby is healthy.

If your baby needs to be retested, get it done right away. Make sure that your hospital and health professional have your correct address and phone number.

What if my baby's test shows a problem?

You will be contacted if your baby needs additional testing.  This does not mean that your baby is sick.  Your baby may need some more tests.  Your baby's health professional will let you know what tests are needed and how to get them.  It is very important that you get these tests done to make sure that your baby is healthy.  If your baby is sick, treatment may be needed right away.

Which disorders are screened for in my state

Select the preferred format below to view a chart of the conditions screened by each program.
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Where can I get additional testing (supplemental) for my baby?

Click the link below for a list of laboratories.  These companies charge a fee for additional screening that may not be offered in your state. Laboratories that screen for additional conditions

What if I have questions?

Ask your baby’s health professional if you have questions or concerns, or contact your state newborn screening coordinator.  Newborn screening coordinators for state programs can be found here.

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