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Newborn Screening Reports and Publications
National NBS Information Reports:
The National Newborn Screening Report is a compilation of information obtained from state and territorial health departments in response to NNSGRC/APHL Newborn Screening (NBS) Questionnaire.
2000 1999 1998 1997 1996
Policy and Guidelines
Compendium of Resources on Newborn Screening Policy and System Development AAP (2002)
Guidelines on Storage and Use of Residual Dried Blood Spots (1996)
US Newborn Screening System Guidelines (1992)
US Newborn Screening System Guidelines II (2000)
The President's Council on Bioethics: The Changing Moral Focus of Newborn Screening: An Ethical Analysis - (2009)
ACT Sheets and Screening Algorithms - ACMG (2006)
Lysosomal Storage Disorders (LSD) Symposium Synopsis - (2005)
Newborn Screening: Characteristics of State Programs - Government Accounting Office (2003)
Health Supervision for those with Sickle Cell Disease - AAP (1996)
Healthy People 2020 - A statement of national health objectives.
From the APHL 2010 Newborn Screening and Genetic Testing Symposium
Association of State and Territorial Health Officials Position Statement on Newborn Screening.
Fact Sheets and Introduction (AAP)
Reports pertaining to the costs of newborn screening and cost-benefit analysis.