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Educational Materials

Samples of patient education brochures*.  Click on a state/program abbreviation to see different examples. Other languages listed as available.

 

Newborn Screening Education Brochures

Disease Specific Brochures

 

Newborn Screening Education                                        English   AL CA FL KY ME MD MD MA NERGG MI NE OH OK PA SD TN               WA WI                                                                        Spanish  AL CA FL KY MD MA NERGG MI NE OH OK PA TN WA WI          Anuak NE                                                                                        Arabic NERGG MI NE OH                                                                       Armenian CA                                                                    Bosnian/Serbo-Croatian NERGG                                                   Cambodian CA MA NERGG WA                                                    Chinese CA NERGG NERGG(simplified) NE OH WA                            Dinka NE                                                                                        Haitian FL MA NERGG                                                                   Italian NERGG                                                                                         Farsi CA                                                                                           French NERGG NE OH                                                                   Hmong CA                                                                                   Japanese OH                                                                                   Korean CA OH WA                                                                          Laotian CA MA NERRG OH WA                                                            Nuer NE                                                                                              Polish NERGG                                                                            Portuguese MA NERGG                                                                   Russian CA MA NERGG NE OH WA                                                  Samoan OH                                                                                  Somali NERGG OH                                                                       Tagalog CA                                                                         Vietnamese CA MA NERGG NE OH WA

 

 

Disease Specific Brochures

3-MCC Deficiency                                                         English CA KY

5-Oxoprolinuria                                                           English IL

Alpha Thalassemia                                                     English WA                                                                                         Cambodian WA                                                                              Chinese WA                                                                                   Laotian WA                                                                                       Spanish WA                                                                               Vietnamese WA

Amino Acidemias                                                       English TN

Arginase Deficiency                                                     English CA

Arginosuccinic Acidemia                                             English KY MO

Beta Ketothiolase (BKT)                                              English KY

Beta Thalassemia                                                        English WA

Biotinidase Deficiency                                                 English IL KY NJ TN WA WA

Carnitine/Acylcarnitine Translocase Deficiency           English MO

Carnitine Palmitoyl Transferase Deficiency (CPT II)  English MO

Carnitine Uptake Deficiency (CUD)                            English KY MO

Citrullinemia                                                               English KY MO

Congenital Hypothyroidism                                         English CA KY MO NJ TN WA                                                                  Spanish CA

Congenital Adrenal Hyperplasia                                  English CA IL KY MO NJ TN WA                                                              Spanish CA

Cystic Fibrosis                                                              English IL KY MO NJ WA WI

Fatty Acid Oxidation Disorders                                     English NJ TN

Galactosemia                                                                 English CA CA IL KY MO NJ TN WA WA

Glutaric Acidemia Type I (GAI)                                   English CA KY MO

Glutaric Acidemia Type II (GAII)                               English CA MO

Hearing Screening                                                       English TN TN                                                                                       Spanish TN TN

Hemoglobinopathy                                                                 English CA MO TN                                                                              Spanish CA

Hemoglobin Sickle/beta Thalassemia                              English KY

Hemoglobin S/C                                                        English KY

Hemoglobin C                                                               English CA WA WA WA WI                                                                    Spanish CA WA WA

Hemoglobin D                                                              English CA WA WA WA                                                                         Spanish CA

Hemoglobin E                                                               English WA WA                                                                                       Cambodian WA                                                                              Chinese WA                                                                                   Laotian WA                                                                                  Vietnamese WA

Hemoglobin H                                                             English CA                                                                                     Laotian CA

Hemoglobin Variant                                                   English WA

Homocystinuria                                                               English IL KY MO TN WA

Hydroxymethylglutaric Aciduria (HMG)                     English KY

Hypermethioninemia                                                                  English MO

Isovaleric Acidemia                                                    English KY MO

LCHADD                                                                     English KY MO

MCADD                                                                          English CA IL KY MO TN WA                                                                   Spanish CA

Methylmalonic Acidemia (MMA)                                   English CA KY MO

Maple Syrup Urine Disease (MSUD)                                English CA IL KY MO NJ TN WA

Multiple Carboxylase Deficiency                                 English KY

Organic Acid Disorders                                                 English IL TN

PKU (Phenylketonuria)                                                English CA CA CA IL KY MO TN WA WA WA WA

Propionic Acidemia                                                       English CA KY MO

SCADD                                                                          English CA KY MO                                                                                Spanish CA

Sickle Cell                                                                    English CA CA CA CA IL KY MO NJ WA WA WA WI                                Spanish CA CA CA WA WA WI

Trifunctional Protein Deficiency (TFP)                         English KY MO

Tyrosinemia                                                                  English IL KY MO

Urea Cycle Disorders                                                    English IL NJ

VLCADD                                                                         English CA KY MO

* The accuracy and completeness of these educational materials are not guaranteed by NNSGRC.  These links are provided as a convenience and are produced by the stated agencies.

 

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*All material within this website is presented as a public service, and does not necessarily represent endorsement by the NNSGRC and its sponsoring agencies. Users of this website are responsible for checking the accuracy, completeness, currency, and/or suitability of all information contained herein.
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